Day 3 Yogi Bears Jellystone Park Camp Resort Bremen, Georgia

Our second day we drove through Mississippi, Alabama and into Georgia.  I will say driving this way is a good way to get somewhere. You haven’t seen all the behind the scenes of what it takes to do this.

I made pre-made breakfasts, lunches and dinners for our daughter so all we had to do was heat and eat.

I will also go on record for saying that Birmingham honestly has some of the worst and scariest drivers ever.

We saw an unbelievable number of accidents. The weather was good though in that cloud cover and small showers actually kept our vehicles cooled off.

We saw some scary accidents like on I20 Westbound there was a tractor trailer that had a car who had spun out of control probably due to rain slick highways. The car was up under the truck. I could not find this on the news or anywhere on the internet. People should start questioning why it is so difficult to pull up a major accident.  Especially one that shuts down a Interstate. My prayers go out to all those involved and those who watched the accident unfold in front of them.

First stop – EZ Dayz Rv Park Southaven, Mississippi

I always have a back up plan because something seems to always inevitably happen.

This time we were planned a month ahead, however our batteries and other mechanicals that Allen started out with seemed to all fall through. It wasn’t the peoples fault we were working with but just a chain of events.  This chain of events led to it was really a challenge to leave but albeit at about 4 or 4:30 we left regardless. I was going to leave that place even if it meant parking at a campground down the road. We made it to Southaven Mississippi.  We normally stay at the Yogi Bear park but this time we weren’t sure where we would be leaving so late. We decided to forgo the Memphis, TN. Whole Foods where we normally stop to eat dinner and keep bussing.


Stop 1 :

EZ Dayz Rv Park.

I called and spoke to Kristy and sent an email and it was right at their closing time.  I explained our long paraphernalia of equipment. We have a 40 ft motor coach, a 22 ft. handicap accessible van, and the van pulls a 10 ft cargo trailer that houses our daughters special needs equipment.

She said that she had spot that could accommodate us. Good. So on we went we didn’t even stop at Whole Foods it was too late.  The campground is really nice. Its huge. There are parts of the campground on both sides of the road.


Outdoor Swimming Pool

Cool off with an invigorating swim or just relax by the pool.

Indoor Hot Tub

Enjoy a refreshing dip in our indoor hot tub and soak your cares away.

Meeting Rooms


The main meeting room offers air-conditioned comfort and access to the adjoining kitchen. The lobby provides a place to sit back and read a book, watch our big screen TV, or enjoy conversation with your fellow guests over a free cup of coffee. The covered outdoor verandah is located by the pool and hot tub and is an ideal place to enjoy a cook-out or other outdoor gathering.

Massage Therapist

Our on-site massage therapist will help you unwind after your day’s travels and activities.

Rates: Please verify on website for most recent rates.

EZ DAZE RV Park is dedicated to providing you with the best RV park sites in the Greater Memphis area. Big rigs are welcome. Drive just a few minutes south of the Tennessee border to Southaven, Mississippi and you’ll enjoy:


  • Full Hook-ups
    Full hook-ups include 20/30/50 Amp electricity, level concrete pads, water and sewer.
  • Pets Welcome!
    Your leashed pets aren’t just allowed – they are welcome at our park!

  • FREE Wi-Fi (Wireless Internet)
    Stay online and connected to your e-mail with our FREE Wi-Fi (wireless internet service).
  • FREE Cable TV
    Enjoy free cable TV service at your site.

Now the downside.

This is good for overnight parking and if you want to stay it is nice. It sort of reminds me of an apartment complex setting for RV’s.  There are a lot of spaces and a lot of those spaces were full but we didn’t see a lot of people.

It is well kept and very clean no trash.

We got to this campground at about 10:30 that night. We were tired but glad the campground was clean. It was very quiet.

We noticed that pulling the bus in there wasn’t enough space for the van or the trailer. This is a major deal since our van needs to remain plugged in and we usually plug it in to our bus.  This keep a cooler cooled for our daughters special dietary needs.

This is NOT what we want especially after calling and sending an email for a specific need. This is why we tend to camp at truck stops occasionally.  Here is the link for the park.

We ended up unhooking our trailer for the night.  We had to squeeze the trailer in front of the bus on the drivers side backed in. We then had to pull in the van next to trailer and passenger couldn’t even get out. Which is a nightmare for a child with special needs , We spent an hour and  half getting unloaded and getting equipment moved. We have had worse but its really disheartening with tired kids and we are tired from driving and we were forced to unhook. The next time we will stay again at Yogi Bear Southaven again.

Prices may be a little more but it is worth not having to unhook and hook back up.

It is needless to say with staying up so late that we were tired, we overslept and then our jacks got stuck and wouldn’t go up.

We were given the ” you need to leave call” . I think it needs to be known that check in we didn’t make and we were clearly late leaving because of staying up so late from moving around equipment.

We did keep with the 3 state rule for us though for traveling.  We did Arkansas, Tennessee, and Mississippi.

I didn’t have time to take any photos to even show you the park.


Here we go….

Another Chapter

Another Song

Another Dance


Thank you Arkansas – my home state for being so kind for all the kind and wonderful people who are here.


Spring 2016 Conway Arkansas

Well it’s almost time to leave and say goodbye.  It has really been an interesting trip.

Fun it really hasn’t been.  It has been heart breaking in a lot of ways.  I guess everyone has their way of saying goodbye.  I had to deal with many things on this trip and to say that it hasn’t been emotional would certainly be a lie.



Mossville Cemetery September 7, 2016 By my dads headstone where his soul lays sleeping.


September 2016 She is letting all the ladybugs fly…..

It is time however to move on.  God is so good.  He is good if you let Him into your life and be good to you.  He needs to be your everything. Those things that we think are from the dark if you have God – we are just like the flowers asleep over the winter time. When the Spring sun hits the flowers and it starts to warm the flowers open with life.


Well I still have a lot to do. We have been getting Beachnest ready for this day ( to leave that is ). Its a lot of work.  We have food and water and will check all the systems tonight to get ready to roll this week.

If you are trying to text me or to email me – we don’t really have email or text sometimes because of the cell towers. Please bear with us until we are parked.  I hope to be better at writing on the website this time. If I had done this when we started it would be amazing for you to see the sights we have seen. We have only done the free sights so our funds go mainly for camp sights, food, and fuel.  Occasionally we get a state park pass especially somewhere worthy like South Carolina.


Arkansas Sunset

Until the next time. If you are out on the road hopefully we can see you sometime. If you are along our path out on the road stop by and say Hi.

We are on our way to sunny Florida for Dr. appointments.

I hope to get at least a few pictures while on the way there and then while we are there.

I just really hope it cools off some.

Happy trails everyone


God bless !

Time to move forward

Moving forward to the “Next Step”

  Life on the road for rehabilitation is not easy.  It’s funny how most people see
it as we are on some

kind of “full-time vacation”.  That could not be further from the truth actually.  I suppose if you have never had a special needs child or worked with a special needs child you couldn’t possibly understand

what is involved.

We have not had an actual vacation in over twelve years. No time off.

Someone please send us on a vacation- I’m tired of being an adult.

Most people associate someone staying in a RV with being retired or on vacation. In our case neither one stands true.

In fact it can be a lot more challenging.
This is what works for our daughter and to fit her needs.  We as a family have made many sacrifices. We will continue to make sacrifices when we need to in order to get this little girl better.
I really can’t expect people to understand this and thats ok.  You also can’t expect to understand something if you aren’t familiar.
Its time for therapy again and once again we are challenged with work, therapy, travel, repairs and costs associated with all of this.
Our daughters care has been highly successful with the therapies and treatments that we have done with her.  There are still many things we are working on.  There is a much larger puzzle.  Therapy, treatments, her daily care, education, daily life skills, and inclusion into our society are all some of the things we are faced with on a daily basis.
We will be trying a new therapy in September this year and are very excited about it.  In the
meantime we have lab work and a Dr. appt. with Dr. Jerry to get out of the way first.
What this involves is finding a “clean lab” not a hospital to get labs and a trip to either Florida or California to see the Doc.
( This expense involves travel – fuel for coach and accessible van, a campground to park while in Florida or California for Dr. appt. and fuel to the next therapy)
We start a new therapy in September. This is exciting. I actually researched conductive education early on. In 2010 there was only one facility in Miami which wasn’t financially possible at the time.
In 2010 at this point we had already lost our house. Not because of mismanaged funds but health insurance doesn’t make house payments or make up for time off from work missed to keep our child alive.
I personally would rather have my children alive and well than to have a house. Hence, this is why we are where we are. Yes we would all love to have a home to come to when we are not doing therapy and treatments. But tell me, how many of you can afford the upkeep and expenses of 2 homes? I’ll bet not very many. I know we can’t. Im just being realistic. It isn’t an option.
 ** Septembers therapy is in Texas. We will need fuel for coach and van as well as a campground while we are there for the month doing therapy. We need to be near the Lewisville, Grapevine or Carrolton, Denton areas.  
There are not a lot of campgrounds in North Texas where we are going. It is also sometimes difficult to find a campground that can fit all of our equipment. Im sure people think we are probably rock stars but we are not.
We have a 2000 LX Bluebird wander lodge motor coach  that we have been blessed to use.  We also have a handicap accessible van and a 10 ft cargo trailer that hold rehabilitation equipment and a freezer that contains her restricted meal plans and food. We have close to 80 feet of equipment or can side by side 45 feet.
We had hoped to then head to the west coast to do Physiotherapy at Polfit Wellness  if you look on the Testimonials page there is our Abigail.  We had planned to do this in October.  I just don’t see this right now. It may be financially impossible.
Hopefully one day I can devote more time to this blog and to our websites so that I can share photos and videos with you. Polfit therapy in Southern California
in conjunction with
Hyperbaric oxygen treatments also in Southern California and the blessing of God helped Abigail to take her first steps.
I was going to post a photo of Abi doing hyperbaric therapy but with crashing my computer three times I have photos scattered everywhere in external drives. This is also why our web site is so far behind in being rebuilt.
None of these therapies or treatments is covered for our diagnosis on any insurance .  As you can tell this is a huge expense.
In the near future I will put everything together on so it is accessible by one page.
We do have a special needs trust that is set up for Abigail’s medical expenses but it does not cover the amount of therapy that is needed.  We have to budget the funds we have and do the very minimum of therapy.  Otherwise we will run out of funds for her lifetime.
We have done fundraising and have a page set up on Coles pages to take donations.  We appreciate all donations. There is honestly no donation that is too small ever.  Coles pages does have a fee to cover their processing so that they can send the families a check to cover costs. Many people complain about this fee but in my opinion Coles pages has expenses as well and it does cost money to be able to run a non profit organization.
We have had to cancel the past 2 years Physiotherapy due to unforeseen circumstances and because of work and not being able to take time off.  We don’t want to cancel again this year as well. It is a lot less expensive to stay in Southern California during the winter months as opposed to summer. So many kids come during the summer break that we could not get in during that time if we needed to. We have seen tremendous progress from these therapies.
We are wrapping things up here and are praying for extra work in Texas while doing therapy, funds to get coach in order ( air conditioner that went out, batteries (6 of them) and our awning broke). We will also be praying for a place to stay in Texas while we do therapy. We are also praying for Abi to do well with this new therapy and for us to see progress. Progress is – not everyone sees the same results).
I honestly will just be thankful to leave this place. I love the state it is my home state. I am just ready to move forward and to get this little girl working again and on the road to recovery.
blessings to you all,
Paris xoxo

Banana Oat Greek Yogurt Pancakes

I found this awesome recipe on http://Banana Oat Greek Yogurt Pancakes .  We are gluten intolerant and I had stopped making pancakes and waffles just because they would make us sick every time we ate them. Even if they were home made. So, I gave these a try. They are so easy I make them in a measuring cup ( a tall one from my juicer) and then I pour them into the pan. I don’t always fry them on the stove top I sometimes even bake them and they are great! I am so addicted to these pancakes they are really fantastic! Be sure to thank Amanda at Running with Spoons for this great recipe.
Prep time
Cook time
Total time
Author: Amanda @ Running with Spoons http://Banana Oat Greek Yogurt Pancakes
Yields: 1 serving, 6-7 pancakes
    • 1/2 cup (40 g) rolled oats*
    • 1/2 tsp baking powder
    • 1/2 tsp ground cinnamon
    • 1/2 medium-size ripe banana, sliced (about 50g)
    • 2 large egg whites
    • 1/4 cup (60 g) plain Greek yogurt**
    • 1-2 Tbsp (15-30 ml) unsweetened almond milk
    • 1/2 tsp vanilla extract
  1. Preheat a skillet over medium heat and coat it with cooking spray or oil. You want to make sure that it’s very hot before you start cooking your pancakes.
  2. Add all the ingredients to a blender in the order listed and blend until the oats have broken down and batter is frothy.
  3. Using a ladle or 1/4 cup (60 ml) measuring cup, drop batter onto skillet until desired size of pancakes is reached. Cook until the edges begin to look dry and bubbles start to form on the top of the pancake, about 1 minute. Using a spatula, flip and cook about 2 more minutes on the other side. Repeat with the remaining batter, making sure to coat your skillet again with oil between each batch.
  4. Remove from heat and serve with your favourite toppings.
* Make sure to use certified gluten-free oats if you need these to be gluten-free.
** You can also use a flavoured Greek yogurt.
Banana Oat Greek Yogurt Pancakes
Print Recipe
Banana Oat Greek Yogurt Pancakes
Print Recipe
Share this Recipe

Seasons of life

Do you hate me because I disagree with you?

Do you call me a biggot because I disagree with you?

I have been watching the things of this world for some time now and it really saddens me to know that our society has fallen so far from God.  It’s no wonder we are a confused, depressed, and angry population.

It saddens me to know that if I disagree with someone about “my beliefs” I am called a biggot.

I still have a right to my belief. I don’t even have to leave me house – you call me on the phone and attack me.  What is wrong with this picture. How do we determine who has a right to their beliefs and who doesn’t?

I don’t believe that anyone has a right to force anyone to do anything against their beliefs. Since when do people start planning a hate agenda because someone thinks or believes differently?

In my situation jealousy, envy and coveting has been the root of the hate and hostility toward me.

I have chosen to believe what I believe because of what I have gone through, research, and how I choose to live my life.

I am not rich. I don’t own anything except a few clothes. I choose not to live of this world but right now I am in it. I serve a loving God whom I choose to follow His ways not distorted of this world.

Do not cast your anger and hate toward me. I have a family that I love and am dedicated to and have been since I married my husband and even God is above them.

It really burdens my heart to see people speak to others and treat others out of hate and spite. It is cruelty.

If you do not believe in the same God I do. That is okay it is your belief. If you do not choose to live your life the way I do, that is okay.

I don’t care what you do it is your choice but please my family has enough on our plate and no resources or family to help with it. Please just leave us out of it.

Celebration of Life

This post has been transferred from Abigaile’s Story Journal.

It is a rather bittersweet time. My husbands birthday is today. I remember his birthday not only because it is the same day as mine but mine is February.

I also remember this day because 13 years ago on April the 7th my daughter Abigaile was not doing so well.

We had some friends over and were doing a Bible study. We were playing music and having a really nice time. Abigaile was 5 months old.

She was in her little bouncy seat with a pacificer and was jumping around a bit to the music. I was glad to see her in such a good mood because just a couple of days before I had taken her for her well-baby visit. At that visit she had her immunizations.

She had been crying and not in the best mood she also wasn’t sleeping well.

I attributed this to getting her shots and felt in a couple of days with motrin or infant Tylenol it should go away.

While I was playing on the piano I heard this strange noise. I asked my husband to check on her on the sofa she was just a few feet away.

When he looked at her she was stiff and rocking back and forth and making a gurgling sound. Initially we thought maybe she got choked on her pacifier. We looked and the pacifier was intact. We looked around to see what she could have gotten choked on and couldnt find anything. She was gurgling even more. Her skin started turning grey. Then she turned blue. I had her on my left arm doing CPR and had the phone in my right hand calling (9-1-1) the EMS came and she was fine. We decided to take her to the hospital anyways to make sure she was okay.

Of course when we got to the hospital she was fine.

Oh my goodness, what just happened?

I started charting everything that she did, the things she wasnt doing.

Two days later the same episode played over again and her eyes started darting. Again, she went by ambulance after stopping breathing.  This time the ER Dr. that was on call asked if he could pray for her.  He was the clinic owner of where our Pediatrician was at. He knew Abigaile was serious. We had the gamut of labs, then straight to the Trauma room.

Our Abigaile wasn’t there, she was out of it. She had her eyes open. Her eyes darting back and forth. Her little body rigid. They did nothing. They observed her. The next ER Dr. came in. He shook his head and said there is nothing that can be done right now. He left the room.

We said that we put our trust, our faith and everything we had in God. We dropped to our knees in the middle of that dirty ER Trauma room floor. Im sure we were sobbing. Our oldest daughter 5 at the time started running a temperature when we checked it, her temperature was 104.F.

We kept praying.   Eventually the ER nurse on duty came in and said they would be admitting our daughter. That she was having seizures.

A few hours later we were assigned a private room. We called every pastor and member of every church that we knew. We called missionaries we called every one and asked them for their prayers over our little girl. We were heartbroken. We really didnt know what to do. We just knew we needed to pray.

Our little Abigaile her body was swollen. She didn’t really seem to come out of the seizure. They gave her Phenobarbitol by IV and it made her worse. More seizures. Uncontrollable seizures.

We were discharged 2 days later.  We had orders to continue the Phenobarbitol that wasn’t working as well as a couple of other meds I don’t remember.

Our orders included from her Pediatrician were to be admitted to Arkansas Childrens Hospital.  With our daughter in a constant seizure pattern we know realize they should have air-lifted her. God was protecting her.

This was back in the day when the constant road work was being done on the I40 Interstate between Alma and Little Rock. We drove from Northwest Arkansas over the mountain the only place where the John Paul Hammerschmidt Highwas was complete.

We got to I40 and this was after my husband had worked all day so then we ate dinner and I drove it seemed all night. I mapped on the Rand Mcnally ( we didn’t have GPS then) the little hospitals along the way. They may as well have been nursing homes. I thought if we got stuck and our daughter was not well I would stop at the hospitals and at least they could air lift her to childrens.

It took almost 4 hours because of construction. We got a hotel that night and then the next morning went to our visit with Dr. Lange at Arkansas Childrens. She saw our little girl, held her and then had the Geneticist to look at her. She ordered an MRI and had her admitted. They took her vitals, weight and height. They were astonished at the size of her head.

We went through multiple tests. She even had a spinal that I was told to leave the room.

She was admitted to ICU and they sedated her brain to stop her seizing.  She was sedated for over three days when they concluded she was able to come out of sedation and was put on a different seizure medication called Topomax. A day later she was discharged. While we were driving back to the hotel she got choked on a teething ring. We stopped at another hotel and called 9-1-1.  By the time the EMS got there it was already dislodged and she spit out the bloody piece that had choked her. We thought initially she was having another seizure but instead she was choking.

One day I will write a book about this little girl of ours. She is a truly a miracle from God.

The Dr.s said that she would never walk, she would never talk, and she would likely be in a “vegetative state”.

One thing I can say about Abigaile is she loves everyone, she loves everything and she even loves her “vegetables”. ( cheeky grin)

Doing Physiotherapy

I am thankful my husband has another year has been blessed by God. Im thankful my Abigaile has lived another year that has been blessed by God.

She still has a very long way to go but I am certain that God has brought us this far and I know that God says He will never leave us or forsake us.

I take God at His Word.

God bless you all thank you for your prayers.

Paris ( mommy of Abigaile ) xoxoxo


The Beachnest

Blue Bluebird Wanderlodge and White Mercedes Sprinter Van

2014 The Grapevine Flood Grapevine, Texas @The BeachNest and The RoadRunner

The Beachnest.  A 2000 LX 40 foot Wanderlodge. Truly this is a blessing from God. We didn’t buy it. We didn’t pay for it. It belongs to God. It was purchased from a special needs medical trust for our daughter that resulted from her injuries.  If anything were to happen to our daughter we would be required to sell it and place the funds back into the trust. This bus is to be used for her lodging for medical purposes while doing treatments and therapy. We would like to actually purchase it one day.

Right now though we could not afford it. We have put a lot of modifications for special needs and special modifications for our daughter. We have taken and will continue to take out things that trigger allergies or anything that could be contraindicating for her daily activities or daily care. I would much prefer that we own it but that isn’t how God allowed it to happen for now at least. We own nothing. We do have some items in storage but thats another post for another time as those items are ruined and should have a claim filed on them. Its simply one battle at a time.

It has been much easier managing Ladybugs care having less stuff. It has been much easier not trying to keep up with an employer who you can’t take off simply because your child isn’t doing well.

I thank God that FedEx was so good to our family when we were taking off so much time I don’t know how my husband left there without losing his job.

Other companies he has worked for has not been so nice. Not understanding. I understand they have a business. Im not sure they would react the same if it were their child or family member.

I looked off and on for almost 5 years or more at Rvs. Travel trailers, etc I love them. I’m not sure why. I especially like the vintage ones. I am a huge fan of airstreams. If we had not had special needs Im sure we would have been a full timing air streaming family.  To me the airstream reminds me of a really cool interior of a leer jet. What is there to not like about this ?

cool airstreams

However, the Wanderlodge reminds me of the interior of a land yacht.  The quality of both is just really awesome.   cool modern Yacht.  Ok I could do better with a different Yacht but its the quality and the home on wheels.

I found a lot of buses and Class A’s. That is what we narrowed it down to that if we were to need to stay in the bus for RV for months at a time. We do therapy for a series of 3 months. We do treatments at that same time. We do 6 hours of therapy then leave the therapy and go straight to treatments for Hyperbarics. That is usually an hour. Then it was an hour drive home. It was typically an 8-10 hour very long day. Then to home, showers, bed and back up and driving again the next morning at 7 to be there again.

Its beyond difficult to get vacation rentals for more than a couple maybe a few weeks at a time. Its even difficult getting a hotel due to tourists and in California people near the beach cities rent a hotel room or several rooms and have their friends and family come over to party. Its crazy. I was also amazed at how many people rent hotels for months to remodel rooms in their homes. We met families who had house fires. And impossible to get a hotel on the Fourth of July near the beach cities.

So we decided because of the job situation and we had yet another landlord when we lived in Phoenix that their house sold while we were living in it. Im telling you if you have a nice home and you want it sold just let us live in it. We rented 4 homes and they sold while we were living in them. It is not easy for us to move.

I found as many Wanderlodges, Eagles and MCIs as I could of a huge variety of price ranges. I looked at hundreds of each online to see layouts, gas and diesel, towing capacity, sleeping arrangements, storage as well as location and prices. This is intense. When one goes on the market at a decent price you have to move quickly or its gone.

So, we saw where they were located and made a list. We had already gotten one extension for rent but was unable to find another. This would be a good time to go look. So we planned our trip put our things into storage and took the Roadrunner. We stayed in hotels along the way. Our gameplay was to look especially in the Memphis and Nashville area for Entertainers. Thank God one of my dear high school friends Jay Singletary was able to get us a tour of a very nice Hemphill Bros. through one of his friends. Yes, we saw some rock stars coaches. WOW! They were gorgeous (some of them) but way more than we could spend. Thank you Jay you rock! Hemphill coaches- Wiki also check out their website. They have some really gorgeous coaches. Our tour was incredible. The service and knowledge is fantastic. I can’t say enough about how we were treated at Hemphill. Hemphill

We met tons of awesome people along the way. We looked all the way to Memphis, Nashville and finally found 2 Wanderlodges to look at in Missouri.  Did I mention we saw Elvis? LOL Invitation to Elvis Presleys mansion

While in Missouri one of the Wanderlodges  had a slide we really liked it. It was bank owned and had water damage in the slide ( we didn’t like all the water damage). We were also leery of buying bank owned without knowing maintenance or repair records etc.  We opened the bay door and water gushed out it hadn’t rained in two days.

We met the people who owned Dr. Scholls bus. You know the “foot people”. I really thought we would buy that bus. I love the table loved so many things about it. It was the first bus we saw. The people who owned it I liked even more than the bus. They answered all of our questions we drove it twice. I just didn’t want to buy the first Bird that I saw and thats what I wanted to do. We all liked it a lot. Great shape too.

SO we ended up in Missouri. We stayed south and in the Midwest. We looked at the bus with water damage it would have cost a lot to remodel and get that bus in shape. With being a bank repo we had no idea what was in store on it. It smelled like mold and it really was an M380 with a slide. We went to look at another Wanderlodge that we found through a broker online through Vintage Bluebirds. We set up a time to meet with the owner. We looked at this bus (this was after looking at many other buses). We knew this was going to be our Wanderlodge. We drove it. It was 15 years old and a Blue Bluebird Wanderlodge. It was also in very good condition. We have had to do some changes. We had to put new tires on. Oh my I will never, never complain about buying shoes for my children again ever. The shoes for this bus. WOWEE !! It is a gorgeous bus. We made some changes right away and took the bus to Georgia to Coachcraft by McDonald to get the bus inspected for leaks, and some general maintenance. We had some modifications we wanted done but because of funds and a Bluebird rally they didn’t happen right away.

In 2-3 weeks on the road, fairly no-stop we found our Bird.

The first time at Coachcraft we had the Mimmi with us. We stayed in a hotel. Mimmi saw a whole new side to us. Hahah. She loved having the food bar and coffee ready on demand all day. Then we took her to Myrtle Beach, Charleston and Savannah with us. She got so tired of us she got on a bus in Myrtle Beach and went back home to Missouri.

So we scheduled for a later time. While we were waiting on approval for funds which we thought might take a couple of weeks ended up being months. This was a huge issue for more than one reason. There were things we wanted Coachcraft to do and while the Bird was in the shop for those things we wanted to do some things our self. We planned a budget, found what supplies we needed and priced where we could save a lot of money. This is also so we could get what we wanted and not just stock from a book or a catalogue.

While waiting for an okay for funds. We decided to spend some time in Myrtle Beach, SC., Charleston, Georgia, and even went to Fl. for a Dr. appt for Ladybug and my husband was able to spend time with his mother for Christmas. While doing therapy in Fl. we stayed at the KOA Orlando. We finally got notice that the funds were cleared and we were scheduled to get the work done as soon  as therapy was over.

We were able to take a truck and go to Atlanta to purchase all of the items we needed on 2 different occasions. We also shopped Ikea. We also were able to find a really awesome discount tile store and bought ceramic wood look alike tile for the bus. We then had to spend time in Georgia ( I love the folks we spent time with they are the nicest people ever at Coachcraft) but I am not a fan of Georgia. The state of Georgia  has a new kind of hot with the worst humidity ever. The mosquitoes have their own zip codes. Its awful !

Ill add more photos later and the next post will be the updates and modifications that were done on the Wanderlodge. We wanted to be able to spend some time in the coach before we made a lot of modifications. We wanted to price shop. We wanted to save as much money as we could. Im thankful we spent the time like we did so we could live in our coach and get used to how we would live in it. What I initially thought we would do ended up only doing some of those things. Its a lot different planning for a child with special needs and planning and modifying things around the daily activities.

The “Roadrunner”

This is a photo of the Roadrunner ( the white handicap accessible van). We decided to do a custom cargo van to meet “Ladybugs” needs. She isn’t in a wheel chair we have a stroller chair. We have a custom lift seat instead of a wheelchair lift. This is so she doesn’t become accustomed to being in a wheelchair. We want for her to walk. We are rehabbing.

We ordered a standard stock cargo van. ( FedEx van ) from the dealer and had a custom van dealer to modify it to be handicap. Here is what we started with .  It is a 2010 Mercedes Benz 2500.


Above is a picture of the handicap accessible van with the cargo trailer or ” the Egg”. This is a cargo trailer that houses equipment for Ladybug. It also has our off-season needs in it in case we are stuck in bad weather.

My husband has built shelving and has wired the trailer so that it feeds to an inverter or a plug. This is how we can have fresh organic food for our “Ladybug”,

Hydraulic Arm Chair

This is a hydraulic arm chair that has a bucket seat. This chair has a remote. It transfers our daughter to and from the van. It can be used to transfer from a stroller to chair. Also from chair to stroller, wagon or to walk with canes.

Ladybug eats a special Organic diet. We sometimes have certain foods flown in to wherever her therapy or treatments are at. The white cargo trailer is called the “Egg”.  Probably the only place you will see a “Roadrunner ” with an egg. Its okay. Its what we do to stay sane. Everything has a name.

Field kitchen

A small cabinet and prep area to prepare food on the road. The cabinet holds Ladybugs supplies from pots, utensils to oxygen masks. Storage for food while on the road.

Ladybug supplies

Storage for Oxygen masks and supplies. Some dry food items.

The van even though it was not built or designed like we requested. We went to Liberty Mo to Chalmers automotive and toured the small garage like facility with the owner Jack Chalmers. I never realized then what this man would do.  While the van appears to look nice here it really no longer looks this way. I hope to take photos soon to be able to show you. I want to warn anyone else who might go shopping for a handicap accessible van of what you need to look for and hopefully you won’t fall for the same mistakes we did. Unfortunately there are many who take advantage of families and people with medical and special needs. This really does happen.

The van also has space for extra passengers in the back or if we are on a long road trip to a Dr.s office or treatments the girls can ride in the back. There is a longer seat in the back. It is a sofa type seat. It does have safety belts. They generally don’t sit there unless they are bored from sitting in their normal seats. Our inverter batteries are stored under this seat as well as some cleaning supplies.

Sofa walk through van

Photo of sofa from the front of the van. You can see it is directly across from cabinet and has safety belts for 3 passengers.

Storage above cabinet storage

Additional storage. We originally had a small oven in this cabinet.

Marine toilet with cartridge

Marine toilet with handicap accessible bar. This toilet has really been God sent. I don’t mean any disrespect. It really has. It is beyond difficult for me to help our daughter in public bathrooms. Not to mention how unclean they are. It is also wonderful on the road trip.

Small beverage refrigerator with freezer top

A small beverage fridge with a small freezer on top. This is great for taking Ladybugs food with us. She cant eat at ANY restaurant or any grocery store. She has been unable to eat at any produce stand. Organic or non organic. We prepare all of her meals from Whole Foods. This is a challenge sometimes with travel. We plan well in advance. There really is No impromptu stopping and eating for us. We heat and eat.

I forgot to add that the original dorm fridge we had that came with the van caught on fire. We barely got our youngest daughter and ourselves out of the van.  My husband rushed in pulled the plug and literally threw it on the sidewalk while we watched it burn.  No one was injured thank God. Im sure the people at the hotel thought we were insane. What was amazing to me is to see how many people were walking by and looking inside the van while the burning fridge was sitting next to the van. No one seemed phased by a burning fridge sitting outside a van only a maid at the hotel who offered to help us. Bless her heart. 

We don’t have the choice to stop and eat at fast food restaurants or grocery stores. I spend a lot of time planning meals, trying to make different meals from the same vegetable. We also have some of Ladybugs meat shipped to us via air mail. This is really, really expensive. This is the only food that has been safe for Ladybugs consumption.  Vegetables have been a trial to find sometimes. I love small town USA but they don’t always have organic vegetables. ( Sounds silly but they don’t).

Control panel on wall for heating and air. Panel controls TV and DVD player or headphone jacks. HEPA Filter for bad air days.

We also have a separate heating and air and HEPA filter in back. This keeps the temperature down for Ladybug who was having seizures. In areas with high pollen or pollution count the HEPA filter has been a blessing.

Television panel with speakers. Used for doing homework, school and watching DVDS between Dr.s apps and treatments or therapy. Also good for long grocery trips.

Television panel with speakers. Used for doing homework, school and watching DVDS between Dr.s apps and treatments or therapy. Also good for long grocery trips. We have separate headphone jacks so the noise doesn’t sound in the van only on the headphones. This is really nice.

We also have the Day and night shades. They haven’t faired well though. They were just plain cheap and while the passenger side is still fine the driver side that you see is falling down and really needs replaced. These are really good for us because of those people who are “gutsy” enough to literally walk up to our windows and “window peep”.  You know who you are. It happens in many states but California people take the blue ribbon on this one. Everyone else just gawks. People in Arkansas have called the police on us at grocery stores even with a handicap plate. They are sure its a camper van and we are sleeping in it. Jeez people get a life!

Finally, the forward with drivers seat and panel. Honestly these photos were take 4-5 years ago when they drove the van to California.  It started falling apart right away. We had electrical fires in the Inverters and walls right away. This is really scary. Driving down the road you have 2 small kids in the car and you see smoke. We keep 2 working fire extinguishers in the van at all times. We have used them on other peoples car fires. We have seen 2 car fires in the past year.

Photo from the sliding door passenger side. This is the hydraulic arm chair. The step stool behind the seat is so our daughter can rest her legs on long trips and not let her feet dangle.

Photo from the sliding door passenger side. This is the hydraulic arm chair. The step stool behind the seat is so our daughter can rest her legs on long trips and not let her feet dangle.

Drivers seat- passenger seat.

Drivers seat- passenger seat.

In the past few months we couldn’t figure why the seat belts stopped engaging. My husband being the handy man that he is and has worked tirelessly on this van and on the coach. He took the seats apart. He found “DUCT tape” holding the belt mechanism. He contact the manufacturer who wanted nothing to admit to it and refused to do anything about it.

It took him contacting the DOT to get any kind of a response.

What this requires now:

  • Taking the seats out of the van.
  • Shipping them to the facility where they were manufactured and trust that they are going to put the real mechanism in to replace the “DUCT tape.”.
  • The facility shipping them back to us.


The owner of the company and his employees stopped taking our phone calls. They told us we could drive the van to Liberty, Mo. but there is no guarantee that anything would be covered on warranty. They are the ones who placed all the wiring, and customized the van. They finally refused to even look at the van. The company Chalmers automotive no longer shows in Liberty, MO it is now showing with Mr Chalmers in Kansas City, Mo. There is no where on the web that you can add a review for them. There was a forum that I placed a review on however it disappeared soon after that. I was taken off the forum.

People always want to see our van. Its pretty cool that they have so much interest. What it does for us is to let people see this blessing from God. Even with the things that are wrong and with its blemishes. It also gives us an opportunity to tell everyone about the Grace of God with our daughter and our family. God saved our daughter from dying. I know He did. I don’t care what anyone things. This little girl is a lot of work. Her equipment and daily care is a lot of work sometimes. We all paid the price. God gives us the Grace, His favor and His mercy to deal with it.



Abigaile’s Story

This is our blogspot.  It is a after the fact recollection of what has happened. Even though we go through trails daily, weekly, yearly of this incident we must keep on. We must fight for our children and we must defend those who are weak and who can not help themselves.

One day I hope to be able to stop long enough to write more on the blogs or maybe even write a book. This is very difficult at times to care for  a child with special needs. Their care never really ends. They need you to help them to eat, get dressed, and to do daily activities. It is a continuity of care. Physical, mental, and spiritual.  Its all very draining. Imagine being at your job sometimes at its very worst. Imagine not being able to leave it to go home. Imagine that you don’t always have a co worker to help you. The co worker is working another job just as equally as important because you need to be able to live, eat and provide shelter.

Imagine you have another child who may be able to feed, get dressed and care for themselves. They still need care, love and attention as well. Imagine being told by someone very close that you are neglecting your well child for your sick child. Yes, I have been told this. I may not be perfect thats okay. I only have 24 hours a day and I do nothing for myself. I haven’t for years.

Imagine that when you have needs to be met they don’t get met. Everyones needs always come before your. It makes you very tired. Its draining and its emotional and your self esteem is never good enough. Imagine making friends but not being able to keep them because your always making apologies for not being able to call, contact or go out with them.

I had someone from church bring her children over for a playdate and to go to the pool at our apartment complex. Our daughter had a seizure and was a mess. The woman from church and her children and our oldest daughter went to the pool without me or our special needs daughter. I was left alone once again to pick up the pieces and clean the mess. Its a lifetime of it. Until life ceases no more for one of us.

Vacation isn’t even a thought or an option anymore. I recently had a landmark birthday. It was barely an event. It sucks the life out of you.

I continue on. I will continue to fight for my children. I will provide for my children. If you have children with special needs and you have supportive friends and family. Please be very grateful for them. They are truly a treasure. Ive always tried to be there for friends and family. Its really difficult.

Please read and share our blogspot. We are on the road to healing and rehabilitation for our daughter. Please don’t be offended if we don’t answer right away. If we don’t respond to your emails or Facebook messages. Its a rare occasion that we have time for social activity. In fact my social activity is going to the grocery store.  Our social activity also includes Dr. appointments, lab work and treatments and therapy. Its common to have therapy for 5 days per week, 6 hours per day with a 15 minute lunch. Don’t forget the 1 hour commute to and from therapy.

This is my life. This is my daughters life. My family’s life.